Hemophilia Resources
Web Links
Bayer Hemophilia Global Portal
http://www.livingwithhemophilia.com
Department of Health and Human Services - Advisory Committee on Blood Safety and Availability
www.dhhs.gov/partner/bloodsafety
This website is maintained by the US Department of Health and Human Services and focuses on issues of blood safety.
Hemophilia Federation of America
http://www.hemophiliafed.org
The Hemophilia Federation of America is a national nonprofit organization dedicated to the blood clot disorders community. Their web site has legislative and industry news as well as a quarterly newsletter.
Kids Health
http://kidshealth.org/
Created by the Nemours Foundation's Center for Children's Health Media, KidsHealth has doctor-approved health information, from articles to animations, about children from before birth through adolescence.
LA Kelley Communications
http://www.kelleycom.com
This web site provides information on regional and international programs, extensive lists of available media, including books, videos, DVD's, kits, and periodicals, as well as educational presentations and information on workshops for patients and families.
National Hemophilia Foundation (NHF)
www.hemophilia.org
The National Hemophilia Foundation is a US non-profit organization, providing medical information on hemophilia as well as access to online communities, news, research, and information on NHF conferences and activities.
Parents Empowering Parents (PEP)
www.PEPprogram.org
This Bayer sponsored site contains information about the PEP program, the process for applying for a grant, a skill building area, educational materials, participant testimonials and commonly asked questions.
US Food and Drug Administration
www.fda.gov
This US government consumer protection agency provides access to FDA information on drugs, biologics and medical devices, and includes information for industry, health professionals, and patients.
US National Institutes of Health
www.nih.gov
The extensive NIH website provides a broad range of information, including a variety of health resources for consumers and researchers, as well as links to all the individual organizations within the NIH.
World Federation of Hemophilia
www.wfh.org
The World Federation of Hemophilia is an international not-for-profit organization for health care professionals and those affected by hemophilia and related bleeding disorders. Their web site includes information about hemophilia, international and regional programs, a global directory of treatment centers, newsletters, and details regarding the WFH Congress.
Remember, your doctor or healthcare provider is the single best source of information regarding you and your health. Please consult your doctor if you have any questions about your health, your symptoms, or your therapy.
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